Big Data & Genetic Privacy: Re-identification of Anonymized Data

Educational Resource
Author:Racine, Valerie
Abstract:

In 2013, Melissa Gymrek, Amy McGuire, David Golan, Eran Halperin, and Yaniv Erlich published an article describing how they re-identified almost 50 individuals from "anonymized"data in a genomic database from the 1000 Genomes Project. Their goal was to show the vulnerability of genomic databases to this sort of manipulation. The case opens discussion of sharing genomic data and protecting privacy.

Keywords:
Big Data, Controversies, Data Management, Ethics and Society, Privacy and Surveillance, Research and Practice
Rights:
Attribution-NonCommercial-ShareAlike 4.0 International (CC BY-NC-SA)
Language:
English
Publisher:
Online Ethics Center
Published Date:
2017
Related Links:
  • https://onlineethics.org/cases/big-data-collection/big-data-genetic-privacy-re-identification-anonymized-data
    • Sponsoring Agency:
    NSF
    Notes:

    Case Study / Scenario|Historical / Non-Fiction Case

    Persistent Link:
    https://doi.org/10.18130/7q4w-1936