Disclosing Preliminary Results to Research Subjects

Educational Resource
Author:Juengst, Eric
Abstract:

A scenario meant to stimulate discussion about when, if ever, information gained from studying a family's genes should be disclosed to the family.

Keywords:
Confidentiality, Human Subjects Research, Data Management, Informed Consent
Rights:
All rights reserved (no additional license for public reuse)
Language:
English
Publisher:
Online Ethics Center
Published Date:
2006
Notes:

Open-ended scenario